CHAM 2018

Terkel Andersen was elected President of EURORDIS - Rare Diseases Europe in May 2003 and has been a member of the EURORDIS Board of Directors since 1997, when the organization was founded.
A person with haemophilia himself, Terkel Andersen has broad experience in disability and health issues becoming involved in the rare disease field in 1983 when he joined a Nordic project on the mapping of problems related to rare diseases. Terkel served as president of the Danish Haemophilia Society 1985-2017. He was one of the founders of the Danish Alliance of Rare Disorders in 1986 and worked as the first Executive Director of the Centre for Rare Diseases and Disabilities of the Ministry of Social Affairs in Denmark from 1990 to 2001.